treatment of rare diseases CoEs- NPRD-2021 financial support 50 lakhs

Eight Centres of Excellence (CoEs) have been identified for diagnosis, prevention and treatment under National Policy for Rare Diseases 2021 Provision for financial support of up to Rs. 50 lakhs to the patients suffering from any category of the Rare Diseases and for treatment in any of the CoEs, mentioned in NPRD-2021

The Government launched National Policy for Rare Diseases (NPRD), 2021 in March 2021 for the treatment of rare disease patients.

The salient features of NPRD, 2021 are as under: The rare diseases have been identified and categorized into 3 groups namely Group 1, Group 2 and Group 3.

Group 1: Disorders amenable to one-time curative treatment.

Group-2: Diseases requiring long-term/lifelong treatment having a relatively lower cost of treatment and benefit have been documented in the literature and annual or more frequent surveillance is required.

Group 3:- Diseases for which definitive treatment is available but challenges are to make the optimal patient selection for benefit, very high cost and lifelong therapy.